Project Description

Thorsten Langer, MD

E: thorsten.langer@uniklinik-freiburg.de
T: +49 (0)761 270-43442
F: +49 (0)761 270-44460

Department of Neuropediatrics and Muscle Disorders
Center for Pediatrics and Adolescent Medicine
Mathildenstraße 1
79106 Freiburg
Germany

The Pediatric Healthcare Research Group investigates how social and cultural factors, organizational processes and personal behaviors influence the quality of health care and quality of health. Our group focuses on four main thematic areas:

  • Integration of care across healthcare sectors
  • Access to specialized pediatric palliative care services
  • Linguistic diversity
  • Interprofessional collaboration.

The goal of our research is to provide evidence on how to improve the quality of care for patients, how to support families and how to overcome inequalities for vulnerable populations.

RESEARCH THEMES

The Pediatric Healthcare Research Group is a multidisciplinary group representing researchers from the fields of pediatrics, psychology and nursing sciences. The group’s work focuses on care processes on the interpersonal and organizational levels (micro- and meso-level) in a variety of settings including children with chronic complex conditions, vulnerable populations and pediatric palliative care,.

A particular strength of our group is the combination of a vast experience of clinical care for patients and families with methodological expertise in qualitative and quantitative methods. Collaborations with external partners such as pediatricians in the ambulatory setting and research institutions ensure access to care processes and methodological rigor. We are aiming to include patients and caregivers in research projects as partners to ensure high levels of patient-centeredness in the research process.

Major projects of the group:

  • Development of an IT-supported Case Management for Children with Spinal Muscular Atrophy (SMA-C+). A tailored Case-Management (CM) will be developed on the basis of a thorough descriptive study investigating the coordination activities and needs of caregivers and the respective indirect costs. An exploratory, comparative evaluation will be conducted to investigate the effect of the CM on the quality of care integrations and health-related quality of life of caregivers.
  • Improving the collaboration between interprofessional clinicians and medical interpreters. We evaluate interprofessional educational intervention including an enactment (triad physician, interpreter, patient) using a pre-post survey among participants.
  • Referral strategies for specialized pediatric palliative care services in southwest Germany.

SELECTED RECENT PUBLICATIONS

COLLABORATIONS, CO-OPERATIONS AND NETWORKS

FUNDING

  • Innovationsfonds des Gemeinsamen Bundesausschusses
  • DFG
  • Robert-Bosch-Stiftung
  • Ministry of Science Baden-Württemberg